Trajectories of care for Quebecers living with a major neurocognitive disorder
CCNA Knowledge Mobilization Product (2024)
The best way to engage patients and caregivers is to provide them with information about the condition and care practice.
- An infographic was developed to describe three typical care trajectories for Quebecers living with a major neurocognitive disorder, based on the type and frequency of their use of health services. Designed to inform a general audience and promote a better understanding of care trajectories, the infographic is based on data from the Régie de l'assurance maladie du Québec (RAMQ).
- The knowledge mobilization plan aims to inform health care teams about the complex care patterns of people living with a major neurocognitive disorder, and to support reflection on access to personalized, coordinated assessment and treatment services for these people and their caregivers. It is based on a holistic approach, focusing on patients rather than their illnesses, encouraging patients/caregivers to participate in care, with respect for their dignity, and adapting to changing needs throughout the disease continuum.
- The intended audience is the general Quebec population, including care providers and patients/caregivers. This infographic was posted on social media platforms as well as shared on the team website and yearly newsletter.
- The anticipated outcomes of the infographic for Quebec residents include:
- To be better informed about what to expect from the trajectory of care of those diagnosed with neurocognitive disorders; and,
- To better understand the positioning of the person in question vis-à-vis the collective of all those in the province diagnosed with neurocognitive disorders.
- An expected impact is an increased trust in the healthcare system as the infographic makes it explicit that there are healthcare improvement goals for the data collected through the research; additionally, the impactful statistic shared in the infographic (96% of all people diagnosed are supported by a family doctor) could be encouraging for those concerned about whether there is a support system in place for them.
About the Team
Dr. Isabelle Dufour (University of Sherbrooke) is a Canadian Consortium on Neurodegeneration in Aging (CCNA) investigator on the Research on Organization of Healthcare Services for Alzheimer’s (ROSA) Team, co-led by Drs. Howard Bergman and Isabelle Vedel.
The ROSA Team produces and transfers knowledge about the organization of services for people living with dementia, in partnership with patients, caregivers, organizations, clinicians, and researchers, with the aim of improving the quality of care for people living with dementia and their caregivers.
Links to key/related outputs, including academic and non-academic, and further reading:
- Trajectoires de soins des personnes vivant avec un trouble neurocognitif majeur (infographic; in French only)
- Newsletters and Achievements | Department of Family Medicine - McGill University
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